Thursday, July 31, 2014

Annual Review Follow Up 2014

I have been busy with going on holiday, work, coursework etc that I have only just got round to blogging again! I never find the time to update the blog and then when I have spare time I never remember!
Anyway, I had my annual review follow up on the 8th July which all went well. I have put on 5kg’s since my annual review this time last year which is brilliant news as I’ve struggled to get to 50kgs for years and years! My lung function is pretty stable in comparison to last year, weirdly my fev1 was exactly the same. My physiotherapy still needs improvements (meaning that I need to do it), however, I joined the gym on Monday so actually went ahead with what I discussed with Jo at the review. Go me!

I met Chris, the new doctor, and he discussed the follow up with me. He said that the bloods showed my Itraconazole levels were low and I have now upped this to two tablets twice a day to try to fight off any infections I have currently got that are stopping the lung function from increasing. I would note what the infections were but you would only be sat there thinking ‘WHAT?’ if you didn’t have CF. We also spoke about inhaled antibiotics to replace the nebulisers to try to find some more time to fit in physio and I have now started an inhaler called Tobi podhaler instead of the Bramitob nebuliser. I am getting on with it quite well and it’s so much easier and quicker to use. However, Jo warned me some people have said they get a ‘horsey’ voice with it and guess what... I happen to be one of those people. I am still on Promixin on my alternate month, but Chris wants to try me on Colobreathe at my next appointment which is the inhaled replacement of Colomycin instead of Promixin. I will upload a video clip of me doing the Tobi podhaler so any CFers who haven’t seen this before can have a look.

There was nothing major at the review and I got to go on my holiday!


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